Tuesday, June 23, 2009

I was at the park today

reading a book with Nick as he leaned over to sniff my hair.  He tells me it smells like popcorn and he asks if we can have some when we get home.

"That's a beautiful dog you have there.  Is it a laberdoodle?"  I look up to see a woman about my age, athletic build, bronzed shoulders exposed in the afternoon sun.  

We talk of dogs for a moment and then she tells me they haven't been able to get a dog because of her son's Sensory Integration Disorder.  Luckily, she tells me, he's almost healed of that.  He used to have apraxia as well but that HAS been healed.  I mention that my son has Sensory Integration Disorder and apraxia.  She removes her sunglasses and perches them atop her auburn hair.  Penetrating green eyes look deep into mine as she tells me of the specialist, one of only three in the entire U.S., that has healed her son.  She sent a video of her child to the specialist and was flying to the clinic a week later.  Apraxia (poof) gone.  As for the sensory issues they're seeing an amazing specialist up in Park City twice a week.  I should really look into it she tells me.  "What are you doing with your son?" 

"He's just doing speech through the school right now,"  I report, realizing full well she may turn me into DCFS at this point.  

I didn't mention that we had done Occupational Therapy, for years.  That we had spent thousands of hours and dollars on private speech therapists, social groups, alternative medicine and ABA therapy.  My family has sacrificed greatly in the name of early intervention, in hopes that Nick would be able to be mainstreamed at school.  Frankly I think Nick deserves a medal just for making it to school and completing the assigned homework each day,  I can't imagine using his down time for more therapy.

"Where do you go to school?" she asks my 4 year old.  Allie stares blankly.  

"My son goes to Challenger.  It's a wonderful program," she beams.

As I walk home my thoughts turn to those who have taken out loans and second mortgages to afford the latest therapy, diet or supplementation.  I have friends who are sacrificing normalcy of family and home in hopes of "healing" their child.  I feel the pressure, wondering if our course of action will be the best for our son in the long run.  

We nod politely as the newest cure is mentioned by well meaning neighbors and friends.  Have we heard of the latest diet?  What about floor time?  Oxygen chambers?  B12 injections?  

It's hard.  

I remind myself that we're doing the best we know how as the smell of popping corn begins to permeate our home.  And then my mind moves to more important things, like if my new shampoo really does make my hair smell like popcorn, of all things.

7 comments:

Unused Account said...

Sometimes I think I am a good writer.
And then I read your blog posts.
And realize I am a doofus.

This is touching and thought provoking. My sister drove her child 3 hours each day and sat in a hyperberic chamber with her son with Cerebral Palsy...to no avail.

I can only imagine what a diffictult decision it is to persue or not to persue these sorts of treatments. But I know you guys will make the right decisions.

Jeni said...

It would be so hard...I didn't want to come over and say hi yesterday at the park and interupt your reading, you guys looked so sweet.

HAVING THE TIME OF MY LIFE....... said...

Amazing Jodi. Amazing the different points of view you can see on issues. Amazing girl.

Jess said...

As Nicks Mother... You will always know what is best for him. He is a joy to all of us and he touches our lives in so many ways.

Kim said...

There will always be something "new & better" in the treatment world of special needs. You simply do the best you can. We often forget that these kids need to be kids. Therapy is great but we don't want to do so much that their childhoods are remembered by how much therapy they went to. Life is short and they need to enjoy it...as do you & I.

kara jayne said...

How can so much talent be possessed in one person?...YOU! EVERY post is perfect...perfectly thought, written, and expressed.

I think we all ask ourselves those questions in all situations with all different kinds of kids. You couldn't have said it better.

Oh, and that shampoo? Dangerous! I still can't walk into a movie theater and NOT get popcorn.

gina said...

Never doubt your decisions regarding Nick, because they, like all decisions you make, are prayerfully decided and inspired.

He is in the most absolutely perfect family for him.

Nick is a happy, care-free, fun, smart, well-adjusted child who loves life and brings delight to those who are fortunate enough to know him.

And no amount of money can buy that.